Thursday, May 29, 2014

My $7 Rant ...

I don't normally do this ... But here it is ... My $7 rant!!!  Any of my followers who aren't in Australia, will glaze over right about now ... But here I am having a rant over $7 .. well $70 in actual fact.  No strike that cos I get bulk billed too .. make that $140...   Plus more potentially too with all of these fees on hospital services and scripts too!!

Over the last few weeks a few people have made their worldly opinions heard on one media site or another, over what's the big deal with this $7 doctors fee... The new taxes... The cuts that are being made in the new budget... Oh my god why are they all having a whine or a whinge about it?! Why don't they get off their fat lazy asses and go and get a job?! And I am getting sooo fed up of holding my tongue... So here I am opening my big fat mouth hehe

Well let me tell you how it will affect me and our life and maybe you can stop and think outside your well paid... potentially 2 income healthy family bubble!!! 

My life story, not that I usually splash it across my personal profiles, is that of an EDUCATED mother of a child with Cerebral Palsy, Anaemia, Thalassemia, Severe Asthma, ADHD, Sensory Processing Disorder.  Who used to work full time. In fact 2 jobs (at one point 2 full time jobs) right up until the day I gave birth ... EARLY!  I had never been out of paid income until the day I had my son, in actual fact, it wasn't unemployed until my son was 6 months old and it dawned on me that he needed more help than most, because he wasn't just a pre-term baby with nothing wrong, he had special needs.  And LOTS of them!

Special needs means LOTS of care, appointments, money!!! Money which I could earn, if I put him in an institution.  How backwards of me you say?! Too right!! That is why I EVERYDAY fight tooth and nail, for my child to have the best life he can, under the circumstances - but some people do still do it!!  Don't get me wrong, what I wouldn't give to have this mystical job that pays 150k a year for me to work from home and look after my son at the same time as ferrying him to his plethora of appointments (WHICH AREN'T FREE), and all the behinds the scenes therapy I do, unpaid in our own home.  The home which I have to fight for every damn day to keep a roof over his head!

I have been up until recently have been receiving a measly sum of $11 child support of his father (PER MONTH), whom we have no contact with, because of having to get a VRO out on and whom refuses to do his taxes to spite us - well not just us turned out there were 5 other mummies in the same position that I was totally utterly unware of for 5 whole years of my life - I digress.  Which comes no where close to covering his $150 worth of life saving meds every month.  I refer to them as life saving, because lets face it... Without the plethora of medications he takes for his asthma and thalassemia etc, he would not be here..  Not to mention the botox which I can't even put a price tag on every 16 weeks to help him - more movement than I could have ever dreamed for him.

Include then the cost of a normal child, because obviously, he can't live without clothes, food, water, electricity to run his nebuliser for his asthma meds. and shoes to fit over his leg splints, because lets face it the $6 pair from Kmart that I can afford, just won't fit them in!!  Oh I almost forgot and a car to run him to every damn appointment at every end of town. Just so he can live some sort of a life that isn't confined to a wheel chair with no prospect on life.  Couple that with the roof over his head, my budget is soo damn tight, that I buy second hand clothes (mostly new) off people that have been to sales and had it sitting in the back of their wardrobes for months, just so I can have some clothing on my own back.

I forego EVERYTHING I possibly can, so that my child can have what is considered a normal life!!

Well normally ALL kids are bulk billed and they are going to be charged too, plus us people that incomes are sooo low that they actually get a health care card.  I receive a carers pension, yay a couple of dollars to put back into my tight budget.  But lets face it, what employer is going to employ me full time at this point... When I have to take a splice out of every day to take my son to 1 x physio appt.  1 x OT appointment & 1 x hydro therapy appt. plus pysical therapy, SOS feeding therapy, Sensory Integration therapy,  homework , so needs help with the writing, holding the books to read etc.   Plus all the hospital/sick time because of his severe asthma and anaemia. That is without taking into any consideration any doctors, paediatrician, specialist, or other time off for general sickness.  Tell me when I have the time to make this $7 back by going to a real Full time job.  In actual fact it isn't $7 and yes they have capped it to 10 visits, but it is more like $140 a year (if you include both of us remember).  And that is nearly 3 WHOLE therapy sessions, which some weeks I struggle to pay for.

If I take into account that fact I will be losing FTB B so I am already $102 worse off a fortnight.  and then throw in the extra money they are going to be putting on his scripts which already come to nearly $150 per month is not going to be cheap!! Couple that with all of my doctors appointments, as with the exception of his cerebral palsy, I have an identical medical make up as my son.  Anything that we go to emergency with may or may not be charged for also if they deem it to be non emergency (which if I am honest the majority of  hospital visits are in the grand scheme of things!!)  If I take ALL of these little dollar signs into account, on average, as long as we aren't sick and need antibiotics too.  GOD FORBID!  We are losing $2,892 give or take A YEAR!! ... For someone who only makes on average $18,000 a year.

So yes for those of you that, are earning big bucks, and are in a healthy relationship that is working out for you, and you are living the DREAM of a perfect family in perfect health, with the perfect family and home life balance.  I am extremely happy for you (not jealous at all because I will be there one day), but really does it give you the right to shit on my already pathetic parade?  I didn't choose this life for my son, it chose us, I had no control over any of it.  The puppeteer whom ever he may be controls our strings and we are just part of the show at this point.  I know one day when he is older I will be able to have my head held high again and have the perfect family time / work ratio when he can do some of the care himself and there are less appointments, but until then...

Can you do the maths... and tell me how that $7 and other cuts don't affect us little people who have paid their dues for the last 20 years - doubly for most of it!! If they think that he is such an amazing treasurer.  Can he please come and fix my budget and tell me how I can make it work - How I can fit in another $7 a week because I really thought I had it nailed!! Please!! I'll even pay him $7 for the trouble!



Monday, May 12, 2014

Ooops Sorry

Ok ... Soooo it has been a while .. Things have been crazyyyyyyyyyyyyy busy for the last 10 weeks!!!

Somewhere in the middle there was Boogs birthday ... He turned 6 ... and my god I am feeling sooo much older!!  I have probably put on at least 4/5kg oops!! Yay for healthy winter eating though.. I think it is funny I always lose weight in winter and eat healthier ... there is something about the 45 degree summer nights that just keep you out of the kitchen ... and I really can't eat when it is ridiculously hot .. makes me feel sick..

Other things keep us busy have been court cases .. I am glad to report that we have a piece of paper *rolls eyes* .. that is supposed to keep us out of harms way for at least 2 years ... - yeah ok ... The car decided it was on its last legs .. so had to get a loan to deal with that .. but have something shiny and new now .. so that's a bit of fun!! Haven't had anything shiny and new for myself since before Boogie was born!!

Anddddd my mum has sold our family home of 32 years to move onto bigger and better things with her fiancĂ©e ... Don't get me wrong I am very excited for them  .. The new house is GORGEOUS .. little bit jealous actually ;) (nah not really - it has a pool and a jacaranda tree poking over the back fence .. and I know what it is like having to deal with our pop up pool let alone a REAL pool filter lol) .. with it brings lots of happy and sad memories as we sift through 32 years of clutter and memories ... My blissfully happy childhood and lots of heart ache in the last decade.

On top of that we have had a busy few months of appointments ... A new paediatrician who has diagnosed Boogies sensory processing difficulties officially and added an ADHD diagnosis to boot!! Yep .. as if life couldn't get more hectic ... With that brings nothing much hehe No medication - which I wouldn't want for him anyway ..  knowing that medication would heighten his sensory problems and make day to day life quite unbearable if I were to do so... and the potential of psych visits later on.  But apart from that .. I am doing EVERYTHING the right way!!!

WOW!!! Do you know how good it is to hear that come out of one of the top Paediatricians mouths in perth is?!

I'll tell you!!! AMAZING!!!

Doing SOS food therapy is a big tick in his book... And sensory integration .. Physio .. OT and speech ... He is though referring me to another Hearing specialist to get me a second opinion on what I think are his sensory problems interfering with his hearing tests.

His MRI is booked in for next week.. So fingers crossed we can officially rule out a tumour *Please keep yours crossed for us too* ... And because of it .. he is having this week off school ... The teacher has sent home a nice HUGE pack of school work so he can keep up!!! WHICH I LOVE!!! And it feels like finally things are clicking into place!!!

Mums big move is tomorrow!!! I can't wait for the next path we are all on ... Things are finally clicking into place on the home front .. with the exception of poppy who has not been well in hospital for the last 9 weeks now .. But he comes home tomorrow too so hopefully things will be a bit more cheery for him!!! BUSY BUSY BUSY week ahead ... Hope you all have time to scratch your head this week .. we won't :P Mothers day got post poned until next weekend so we can all celebrate it together  .. Anyway until next time .. I promise to try a bit harder and not make it soo long between blogs again ..

Sweet dreams peeps xox