Wednesday, October 15, 2014

Sensory Overload

Every time I pack a bag for Boogie... Whether it be a sleep over ... A weekend away with family .. The dreaded holiday.. I don't imagine an easy going relaxing time ... The moment someone says let's do it ... the blood drains from my face ... and my brain goes into over drive!  People tell me to relax ... it will be fun .. enjoy it .... Clearly they have never experienced the dilemma that is being the over prepared parent of a sensory child.

From the moment someone says lock it in .. A thousand things are running through my mind ... To avoid a meltdown of sorts ... I need to pack EVERYTHING known to man that clicks into our sensory puzzle ... Short of the kitchen sink .... Cos Boogie is aversive to water ... not the drinking kind ... Just the washing and splashing kind..

Some days I seriously think running a marathon would be easier than what is running through my brain.. For every stimulant .. there is a subsequent reaction unfortunately and I need to be prepared ... Sometimes it means that Boogies baggage .. and I mean the literal kind (although the emotional sort is never far behind) .. Literally outweighs everything I need in list of things to organise... Oh and pack

At the moment.. Chewy necklaces are right up the top of the list .. it goes to school .. it goes to therapy .. it goes EVERYWHERE!!!! And there is no time to be in short supply ... they look frazzled come week 2 of hanging around that dainty little neck .. Actually frazzled is not the right word .. I think maybe chewed and gnawed to perfection ... Mr Robot is usually missing a leg or 2 .. and hanging vicariously off his safety clasp .. which then gets replaced with a new rubber safety clasp ... Oh the pain of re-threading rubber through a thin rubber tube of medical grade rubber... *Le-Sigh*

JabJab is definitely the next on the list ... sometimes ... if it is a small appointment .. or just a trip to the shops ... you can persuade Boogie to bring one of the baby JabJabs ... Yes .. We have a whole family lol ... BUT there are conditions ... JabJab's tag is often chewed or rubbed to perfection (we roll it between our fingers ... or around in little circles on our nose when we are stressed out)... so it has to be a whole JabJab .. no holes with stuffing poking out ... Bell intact (it is a rattle toy) AND a perfect REAL tag ... can't be a pretend tag that mummy has painstakingly sewed on from some other teddy or a little piece of ribbon or satin .. No no ... It has to be perfect ... slightly rubbed .. and Authentic!!

JabJab is well travelled .. he has seen the sights ... been to Disneyland in Hong Kong .. Something admirable for a teddy of sorts to have achieved in a life time!  He plays golf .. Watches movies ... and is a Huge fan of popcorn .. I do digress though .. I guess I could do a whole post on the adventures of JabJab - In the words of Gru from 'despicable me'  "LIGHT BULBBBB."


Get back on track .. Get back on track hehe  .. See what I mean .. my brain goes of in spirals ... flicking in every direction ...

We need to take wet wipes ... Wet wipes are essential ... because I can't just splash water over his face or use a flannel that is a big no no ... even a wet wipe (not the huggies ones cos they are too thick) has to be wrung out so it is not drippy and yucky.  


We NEED the Ipad & earphones (educational games oh and his favourite rock band concert - obviously "Godsmack" - don't ask!!) ... things can be too loud .. and sometimes need blocking out .. he finds a nice strong rock beat comforting .. Go figure

Next comes a blankey ... Has to be fluffy and soft ... and MUST come complete with a tag of its own too....

We have a light up pillow pet that comes for sleep overs and trips ... Because we don't like the dark ... It puts a star lit sky silhouette on the ceiling ...

Snacks ... Safe foods have to be planned out ... He needs to have access to things that are safe in his mind... so that he has options .. Whether it be in the car on the drive ... or when we get there ... or a routine before bed ... the drink bottle because with his CP his hands are way too unsteady for a cup ..

Oh and the clothes that have to be packed ... Oh lordy ... Plus leg splints ... Shoes that fit over leg splints ... Special socks long enough for legs splits ..... shoe inserts ... the list goes on and on!!! And to be honest I have probably omitted quite a few things for the sake of my brain isn't working this morning ... (Yay for first day back at school foggy brain hehe)

I can honestly say I envy (not in a nasty way just in a longing for normal kind of way)... every single mum that just gets to grab her handbag a couple of juice boxes for the kids and go out ... not have to consider the time you visit a bowling alley to have some sort of normality because it might be too loud ... I think it actually makes me a little OCD ticking off all those checklists in my head ... But then ... I wouldn't really change his world ... We manage ... ticking one box at a time!!

Hope you all have a great week  DMMC x




Hospital Visits and Holidays take ALOT of planning!! 




Monday, October 6, 2014

Soup ...

Yep ... it's been a while ... I'll say sorry ... but I really haven't had too much time to think of anything but us recently ... You know when people talk about being crazy CRAZY busy?! ... Well that's us ... I recently have only been functioning on 50% .. thanks to my amazing support system we have gotten through relatively unscathed!! ..

I found out that I either have a benign tumour or a cyst in the back of my head which is causing a whole heap of havoc ... So on top of our normal crazy schedule .. I have had scans .. and specialist appointments for myself to boot .. and that is without even mentioning the days I have had extreme vertigo and migraines ... *Yay*

So I thought I would slip back in with something a little bit easy.. that I have been meaning to do for a while now :D Hope you'll forgive me xx

Sooooooooooo one of Boogies new found things ... Is dipping Toast or VERY CRUSTY bread into soup ... He gets a little bit of the flavour .. without toooooo much of the texture ...

The go to favourite for the last few weeks has been chicken and sweet corn ... I make it relatively from scratch .. and let me tell you it is probably one of the most fiddly soups I have EVER had to deal with .. Apart from our family "Brodo" recipe .. which drives me CRAZY picking out the bones *URGH*

Anyway thought I would share it a little cos it is soooo damn yummy .. I have been storing it in the freezer without the rice ... and has been making life sooo much easier on a busy day all I have to do is steam some rice in the rice cooker which I do while doing the whole bath routine :D .. Can't really sneak too many veggies etc into this one .. but it tastes sooo damn good!!!

Here goes :

2 litres* chicken stock (You can cheat & use stock cubes, or you can pre-make the real stuff mmm)
4 chicken breast fillets
Light soy sauce
4 teaspoons finely grated fresh ginger
3 Cloves minced/finely chopped Garlic
Cornflour
60ml (1/4 cup) water
2 x 420g can creamed corn
2 x 300g can corn kernels, rinsed, drained
4 egg whites
1 teaspoon sesame oil (for each bowl at the end)
6 green spring onions, thinly sliced diagonally
Salt & freshly ground black pepper
Sambal/Chilli Paste for taste on the top

Start with your Stock and chicken in a large saucepan and bring to the boil over high heat. Reduce heat to low and simmer for 30 minutes or until chicken is cooked through. 

Transfer chicken to a heatproof bowl. Set aside for 5 minutes to cool slightly. Finely shred with a fork against the chicken grain is easier ... 

Add the garlic and ginger to the pot mixture. Place the cornflour in a small bowl and gradually stir in the soy sauce until it makes a smooth paste and is combined. Gradually stir the cornflour mixture into the pot. You may need to do it a couple of times to get it thick enough or to your liking... Stir for 2 minutes or until the mixture thickens slightly.

Add the chicken back in with the creamed corn, corn and cook, stirring occasionally, for 2 minutes or until hot.... 


Use a fork to whisk the egg whites in a small bowl.  Slowly pour it bit by bit into the soup .. you need to use a chop stick and wisp them through so you don't end up with BIG clumps of egg ... Cook for 2 minutes or until white ribbons swirl though the soup. Remove from heat.

Apart from the rice (which I do in a rice cooker so takes me 2 seconds to do while everything else is going on ... if you leave that and the chicken in the stock for a while ... you don't really need to do anything except for the last few ingredients Takes about 10 mins of prep .. and 10 mins to cook once your chicken is ready ... 

I serve it over steamed rice ... cos that is how I have it at the local chinese shop for lunch and I LOVEEEEE it that way lol But I also add some baby spinach to my bowl too between the rice and soup layer!! Then on top a drizzle of sesame oil ... Salt and Pepper to taste ... Spring onions and some of the chilli or sambal..

It takes a little while, but it is totally worth the effort!!!! YUM!





Just for the record this is MY bowl lol ... there is no way little Mr sensory would have something green in his bowl hehe x